Who We Are

Welcome to the Huntington's Disease Society of America's (HDSA) Utah Chapter. We are a part of HDSA's Pacific West Region.

Our Mission

To improve the lives of everyone affected by Huntington's disease and their families.

Our Vision

A world free of Huntington's disease.

About HDSA

The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today, hope for tomorrow for people with Huntington's disease and their families. In the battle against Huntington's disease no one fights alone. At HDSA, family is everything.​

HDSA Centers of Excellence

The HDSA Centers of Excellence provide an elite multidisciplinary approach to Huntington's disease care and research.

At these world-class facilities, patients benefit from expert neurologists, psychiatrists, therapists, counselors and other professionals who have deep experience working with families affected by HD and who work collaboratively to help families plan the best HD care program throughout the course of the disease.

For the exact address of each HDSA Center of Excellence, click here for our Locate Resources page

Contact Us

HDSA Utah Medical Resources:
University of Utah Huntington’s Center of Excellence
For appointments and questions contact 801-585-7575 
For predictive testing, contact Emily Spoth: Emily.Spoth@hsc.utah.edu
For Social Work, Becca Post: Becca.Post@hsc.utah.edu

HDSA Utah Support group:
Meets: 2nd Monday of the Month
Time: 6:00pm
Location: VIA ZOOM

Questions? Contact Palola at 801-581-4543 or paola.wall@hsc.utah.edu

HDSA Pacific West Regional Development Officers
Christine Greve
p. 760-566-9622
e: cgreve@hdsa.org

Nichole Mendoza
p. 707-416-6002
e: nmendoza@hdsa.org

Utah Social Worker:
Name: Becca Post MSW, LCSW
Phone: 435-200-5804  
Email: Rpost@hdsa.org