Who We Are
Welcome to the Huntington's Disease Society of America's (HDSA) Utah Chapter. We are a part of HDSA's Pacific West Region.
Our Mission
To improve the lives of everyone affected by Huntington's disease and their families.
Our Vision
A world free of Huntington's disease.
About HDSA
The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today, hope for tomorrow for people with Huntington's disease and their families. In the battle against Huntington's disease no one fights alone. At HDSA, family is everything.
HDSA Centers of Excellence
The HDSA Centers of Excellence provide an elite multidisciplinary approach to Huntington's disease care and research.
At these world-class facilities, patients benefit from expert neurologists, psychiatrists, therapists, counselors and other professionals who have deep experience working with families affected by HD and who work collaboratively to help families plan the best HD care program throughout the course of the disease.
For the exact address of each HDSA Center of Excellence, click here for our Locate Resources page
Contact Us
HDSA Utah Medical Resources:University of Utah Huntington’s Center of Excellence
For appointments and questions contact 801-585-7575
For predictive testing, contact Emily Spoth: Emily.Spoth@hsc.utah.edu
For Social Work, Becca Post: Becca.Post@hsc.utah.edu
HDSA Utah Support group:
Meets: 2nd Monday of the Month
Time: Xpm
Location: X
Questions? Contact Palola at 801-581-4543 or paola.wall@hsc.utah.edu
HDSA Pacific West Regional Development Officers
Christine Greve
p. 760-566-9622
e: cgreve@hdsa.org
Nichole Mendoza
p. 707-416-6002
e: nmendoza@hdsa.org
Utah Social Worker:
Name: Kayla Duncan MSW, LCSW
Phone: (435)-216-3250
Email: kduncan@hdsa.org