Connect with our local chapter:
We are the Huntington's Disease Society of America, Utah Chapter, the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease.  From community services and education to advocacy and research, HDSA is the world's leader in providing help for today and hope for tomorrow for people with Huntington's disease and their families.

The HDSA Mission:

-To help individuals affected by Huntington's disease and their families through support and services.
-To educate both the public and health care professionals about Huntington's disease.
-To promote and support research directed at discovering a treatment and ultimately a cure for Huntington's disease.

While there is still no cure for HD, today there is more hope than ever that we can beat this disease.  Until then, our chapter, will strive to provide support and sustenance to our HD families, knowing that while research provides hope for the future, we must provide care for our HD community today.  We have become an active community, educating ourselves, sharing information and advocating for ourselves and our loved ones.

Contact us today to volunteer, join a committee, participate in or coordinate a new event, become a sponsor, locate a support group or attend an educational event near you!

Chapter President: Morgan Pratt

HDSA Utah Medical Resources:
University of Utah Rescource Coordinator: Please contact Eva Tukuafu at O: 801-585-1086 // P: 801-339-0639 or

HDSA Utah Support group:
Meets: 1st Monday of the Month
Time: 6:00pm
Location: Imaging & Neuroscienes Center 729 Arapreen Drive, Salt Lake City, UT Conference Room 1153

Questions? Contact Palola at 801-581-4543 or

Nancy Rhodes
Director of Field Development & Operations
Huntington’s Disease Society of America
P. O. Box 2078
San Marcos, CA 92079
Phone: 760-566-9622

Utah Social Worker:
Heather Hirsche